So this is what we've been waiting for. A good 2 months after surgery, Jack has managed to keep his chest clear of pleural effusions. We are on 2 doses of Lasix, daily, and the aldactone and potassium. He is acting normal- has more energy than ever...and is his happy self. I remember hearing from other Fontan mom's, that suddenly after this last surgery their child had bounding energy, and I was thinking "Jack ALREADY has energy NOW, what will he be like AFTER surgery!!?"
Well, he is MORE energetic, if that is even possible. He's louder, faster, stronger- it's amazing. It's like taking your car into the shop, having it be worked on for a few hours, then suddenly, your CAR WORKS! That is how quick it feels like Jack's abilities have changed. Even the fist time we were discharged from the hospital from this surgery, he could climb the stairs without stress.
I'm so grateful for this LONG, HARD process we went through to get here. It is more rewarding than I ever imagined.