This was originally started for my son, and our family. It was a way to keep everyone on track about his journey through 3 open heart surgeries, and 2 other surgical repairs to bring him where he is today. More and more we are hearing about Hypoplastic Left Heart Syndrome and we want to share our story not only to help comfort other families who are experiencing similar circumstances, but to help further the awareness of this congenital heart defect and improve study and research to treat it. Please feel free to share your story, ask questions, or just read. You can contact me at lisamarietrent@gmail.com
Followers
HLHS is a rare heart defect in infants that can be diagnosed before birth. The only options are to either have a transplant, or a 3 stage surgery called the "Norwood Procedure." Jack was diagnosed at 20 weeks gestation. He's had 2 of 3 surgeries and is doing just fine.
I wanted to provide this site for all the people who type "Hypoplastic Left Heart Syndrome" into their search engines. Whether your baby was just diagnosed, or your child is about to have surgery, or has already had the surgeries, or you simply want to reach out for some support and comfort from people who are going through the same thing as you. Post comments, ask questions, come back and visit, tell me your story, ask for prayers...do whatever you need to use this site to help you.
1 comments:
I just breathed a sigh of relief...truly. Way to figure out the many ins and outs of the crazy system. That is the best news to hear in a long time!
Post a Comment