Where Mom's, friends and family of HLHS babies can share their stories, ask and ansqwer questions, and learn more about miracle heart babies...
Saturday, April 9, 2011
Holly Saunders McKell, a Heart Hero.
Holly Saunders McKell was born with one valve and one artery- and due to complications with her liver and lungs, her heart was weak and she needed a donor heart, lung and liver. With such odds against her, she chose to live a wonderful life knowing her days were numbered. Holly returned to her Heavenly Father on Saturday, April 2, 2011. I see her as a hero and know that she has been an example to all CHD survivors. Our thoughts and prayers go to her family and we send our love.
Thank you for your post. I'm Holly's sister and randomly came across your blog. When Holly was born they didn't even have a name for her heart problem and it wasn't until pretty recently we learned there was a name for it now. She lived as rich and full a life as anyone with such a heart problem could and is an example to all that share her difficulties. She was the oldest living fontan patient I believe. We are so proud of her
This was originally started for my son, and our family. It was a way to keep everyone on track about his journey through 3 open heart surgeries, and 2 other surgical repairs to bring him where he is today. More and more we are hearing about Hypoplastic Left Heart Syndrome and we want to share our story not only to help comfort other families who are experiencing similar circumstances, but to help further the awareness of this congenital heart defect and improve study and research to treat it. Please feel free to share your story, ask questions, or just read. You can contact me at lisamarietrent@gmail.com
Followers
HLHS is a rare heart defect in infants that can be diagnosed before birth. The only options are to either have a transplant, or a 3 stage surgery called the "Norwood Procedure." Jack was diagnosed at 20 weeks gestation. He's had 2 of 3 surgeries and is doing just fine.
I wanted to provide this site for all the people who type "Hypoplastic Left Heart Syndrome" into their search engines. Whether your baby was just diagnosed, or your child is about to have surgery, or has already had the surgeries, or you simply want to reach out for some support and comfort from people who are going through the same thing as you. Post comments, ask questions, come back and visit, tell me your story, ask for prayers...do whatever you need to use this site to help you.
1 comments:
Thank you for your post. I'm Holly's sister and randomly came across your blog. When Holly was born they didn't even have a name for her heart problem and it wasn't until pretty recently we learned there was a name for it now. She lived as rich and full a life as anyone with such a heart problem could and is an example to all that share her difficulties. She was the oldest living fontan patient I believe. We are so proud of her
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